ERKNet

The European Rare Kidney Disease Reference Network
  

Workgroup Pediatric Kidney Transplantation

This Work Group will develop guidelines and educational material for pediatric kidney transplantation in close colleration with the working groups for pediatric kidney transplantation of the Society of Paediatric Nephrology (ESPN), the International Pediatric Transplantation Association (IPTA), and the CERTAIN Research Network. Outcome Indicators will be defined and evaluated in cooperation with the SONG Initiative.

Our experts will provide online consulting to European pediatric kidney transplantation centers within and outside the ERKNet Consortium.

Also, the Work Group will have close interactions with TransplantChild, the European Reference Network for pediatric transplantation.

Research goals for pediatric kidney transplantation will be defined according to our patients' needs in cooperation with the CERTAIN Research Network.

Publications

Publications 2017-2019

CERTAIN Research Network publication list: https://certain-registry.kikli.uni-heidelberg.de/publications.html

WorkGroup Members

Lars Pape  Speaker Hannover, Germany,
Hannover Medical School  		» Ped. center
  Burkhard Toenshoff  Co-Chair Heidelberg, Germany,
University Hospital  		» Ped. center
Antonia Bouts  Amsterdam, Netherlands,
Amsterdam, Academic Medical Center (AMC)  		» Ped. center
Gema Ariceta  Barcelona, Spain,
Hospital Universitari Vall d'Hebron  		» Ped. center
  Marino Asensio  Barcelona, Spain,
Hospital Universitari Vall d'Hebron  		» Ped. center
  Romy Gander  Barcelona, Spain,
Hospital Universitari Vall d'Hebron  		» Ped. center
  Marina Muñoz  Barcelona, Spain,
Hospital Universitari Vall d'Hebron  		» Ped. center
  Sandra Habbig  Cologne, Germany,
University Hospital  		» Ped. center
Lutz Weber  Cologne, Germany,
University Hospital  		» Ped. center
Anja Büscher  Essen, Germany,
University Children`s Hospital  		» Ped. center
Giorgio Piaggio  Genova, Italy,
Istituto Giannina Gaslini  		» Ped. center
  Antonella Trivelli  Genova, Italy,
Istituto Giannina Gaslini  		» Ped. center
  Thomas Henne  Hamburg, Germany,
University Medical Center Hamburg-Eppendorf  		» Ped. center
  Sebastian Loos  Hamburg, Germany,
University Medical Center Hamburg-Eppendorf  		» Ped. center
  Anne Mühlig  Hamburg, Germany,
University Medical Center Hamburg-Eppendorf  		» Ped. center
Jun Oh  Hamburg, Germany,
University Medical Center Hamburg-Eppendorf  		» Ped. center
  Raphael Schild  Hamburg, Germany,
University Medical Center Hamburg-Eppendorf  		» Ped. center
  Thurid Ahlenstiel  Hannover, Germany,
Hannover Medical School  		» Ped. center
Anette Melk  Hannover, Germany,
Hannover Medical School  		» Ped. center
  Mario Schiffer  Hannover, Germany,
Hannover Medical School  		» Adult center
Franz Schaefer  Heidelberg, Germany,
University Hospital  		» Ped. center
  Tuula Hölttä  Helsinki, Finland,
Children´s Hospital, Helsinki University Hospital  		» Ped. center
  Juuso Tainio  Helsinki, Finland,
Children´s Hospital, Helsinki University Hospital  		» Ped. center
  Elisa Ylinen  Helsinki, Finland,
Children´s Hospital, Helsinki University Hospital  		» Ped. center
Noel Knops  Leuven, Belgium,
University Hospitals Leuven  		» Ped. center
D Stephen Marks  London, United Kingdom,
Great Ormond Street Hospital  		» Ped. center
Jelena Stojanovic  London, United Kingdom,
Great Ormond Street Hospital  		» Ped. center
  Justine Bacchetta  Lyon, France,
Hôpital Femme Mère Enfant & Université de Lyon  		» Ped. center
  Birgitta Kranz  Münster, Germany,
University Hospital  		» Ped. center
Sara Testa  Milano, Italy,
IRCCS Ca' Granda Ospedale Maggiore Policlinico  		» Ped. center
Marlies Cornelissen  Nijmegen, Netherlands,
Radboud UMC  		» Ped. center
Andrea Carraro  Padova, Italy,
Azienda Ospedaliera di Padova  		» Ped. center
Luisa Murer  Padova, Italy,
Azienda Ospedaliera di Padova  		» Ped. center
  Marina Charbit  Paris, France,
Necker-Enfants Malades University Hospital  		» Ped. center
  Remi Salomon  Paris, France,
Necker-Enfants Malades University Hospital  		» Ped. center
  Luca dello Strologo  Rome, Italy,
Rome, Bambino Gesù Children's Hospital  		» Ped. center
Isabella Guzzo  Rome, Italy,
Rome, Bambino Gesù Children's Hospital  		» Ped. center
  Kajsa Asling Monemi  Stockholm, Sweden,
Karolinska University Hospital  		» Ped. center
  Niwinska-Faryna Bogna  Stockholm, Sweden,
Karolinska University Hospital  		» Ped. center
Maria Herthelius  Stockholm, Sweden,
Karolinska University Hospital  		» Ped. center
  Britta Maecker  External MHH, pediatric Oncology 
  Antonio Cabrera Cantero  Patient representative http://hipofam.org/ (Hypomagnesemia) 
  Susana Carvajal Arjona  Patient representative http://hipofam.org/ (Hypomagnesemia) 
European Reference Networks
ERKNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Commission.
For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern