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Just published in Kidney International Reports | Renal and Extrarenal Phenotypes in Patients With HNF1B Variants and Chromosome 17q12 Microdeletions

Discover groundbreaking insights into how HNF1B variants impact kidney survival in patients with chronic kidney disease.


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Just published in European Journal of Human Genetics | Consensus Statement on Bardet-Biedl Syndrome

Joint effort by ERN-Eye, ERKNet, Endo-ERN, and ERN-ITHACA!


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New ERKNet Surveys launched!

Consider you participation in important research studies


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Events

National Workshop on Patient Rights - Valga/Valka

You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Valga/Valka on September 26th!

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How to deliver a diagnosis - EURORDIS webinar

This webinar aims to improve the way of delivering a rare disease diagnosis to patients. It is presented by experts of various ERNs.

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