EURODIS Webinar: Patient Representatives Involvement in the ERN Evaluation

Exchange of Good Practice webinar

A EURORDIS webinar on "Patient Representatives Involvement in the ERN Evaluation" will be held on April 21, 2023. Find more information here: https://www.eurordis.org/de/exchange-of-good-practice-patient-representatives-ern-evaluation/


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Events

EURORDIS Webinar: Guide to developing a Patient Journey

This webinar will be on March 20th, 2024 from 15.00 -16.00 CET

Exploring Patient Journeys: Enhancing healthcare services through patient-centered…

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3rd YNP (ERA) - YPNN (ESPN) joint e-seminar: IgA nephropathy, from childhood to adulthood including transition

Speakers: Alexandra Cambier, Canada Josh Storrar & United Kingdom Patient’s Perspective

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FEDERG F2F Meeting

The FEDERG F2F Meeting marks ten years of progress in supporting and researching rare and genetic kidney diseases across Europe.

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[ONLY IN SPANISH] Conferencia sobre la hipomagnesemia hereditaria

Únase a Hypofam en Valencia el 28 de septiembre para debatir sobre la hipomagnesemia hereditaria.

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