Learn more about the European Reference Networks and how to unlock their potential for patients with rare diseases.
The CNE international conference is hosted every second year and brings together scientists, clinicians, families and adult patients. Attendees from…
A German patient group invites you to the International Patient's Conference - a weekend in Berlin concerning rare kidney diseases.
You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Athens on September 17th!
Nephie e.V. lädt zum Patientenkongress nach Hamburg ein. Sie erwartet ein Programm mit Vorträgen und Austausch mit anderen Betroffenen und Experten.
This workshop will spotlight the latest developments in Alport Syndrome.
This webinar will be on March 20th, 2024 from 15.00 -16.00 CET
Exploring Patient Journeys: Enhancing healthcare services through patient-centered…
Speakers: Alexandra Cambier, Canada Josh Storrar & United Kingdom Patient’s Perspective
The FEDERG F2F Meeting marks ten years of progress in supporting and researching rare and genetic kidney diseases across Europe.
Únase a Hypofam en Valencia el 28 de septiembre para debatir sobre la hipomagnesemia hereditaria.
