ERKNet Autumn Working Group meetings

for members only

From October to December, the second working group meetings of 2023 will take place. The invitations and access links will be sent to the members of the respective working groups. The access links will be latest send 3 days ahead. 

09  October, 4:00-5:30 PM

Hereditary Glomerulopathies

11 October, 4:00-5:30 PM

Tubulopathies

18 October, 4:00 - 5:30 PM     

Metabolic Nephropathies

25 October, 4:00 - 5:30 PM      

TMA

30 October, 4:30-6:00 PM      

Pediatric CKD/Dialyse

22 November, 4:00-5:30 PM     

CAKUT & Ciliopathies

29 November, 4:00-5:30 PM

AD structural disorders

TBD, 4:00-06:00 PM      

Immune Glomerulopathies

TBD

PedTx /CERTAIN

 


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Events

Patient Partnership Webinar – Unlocking ERN Potential: Disease Specific Measures

Learn more about the European Reference Networks and how to unlock their potential for patients with rare diseases.

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CNE International Conference

The CNE international conference is hosted every second year and brings together scientists, clinicians, families and adult patients. Attendees from…

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Complement Weekend: International Patient’s Conference on aHUS and C3 Glomerulopathy/MPGN

A German patient group invites you to the International Patient's Conference - a weekend in Berlin concerning rare kidney diseases.

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National Workshop on Patient Rights - Athens

You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Athens on September 17th!

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[ONLY IN GERMAN] Patientenkongress 2024 des Nephie e.V. in Hamburg

Nephie e.V. lädt zum Patientenkongress nach Hamburg ein. Sie erwartet ein Programm mit Vorträgen und Austausch mit anderen Betroffenen und Experten.

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[ONLY IN POLISH] National Workshop on Patient Rights - Warsaw

You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Warsaw on October 9th!

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[ONLY IN GERMAN] Webinar Seltene Nierenerkrankungen - Herausforderungen & Psychosoziale Belastungen

Der Bundesverband Niere e.V. lädt ein zum Webinar über seltene Nierenerkrankungen - Herausforderungen & Psychosoziale Belastungen

Speaker: Prof. Max…

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7th International Workshop on Alport Syndrome

This workshop will spotlight the latest developments in Alport Syndrome.

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EURORDIS Webinar: Guide to developing a Patient Journey

This webinar will be on March 20th, 2024 from 15.00 -16.00 CET

Exploring Patient Journeys: Enhancing healthcare services through patient-centered…

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3rd YNP (ERA) - YPNN (ESPN) joint e-seminar: IgA nephropathy, from childhood to adulthood including transition

Speakers: Alexandra Cambier, Canada Josh Storrar & United Kingdom Patient’s Perspective

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