A EURORDIS webinar on "Patient Representatives Involvement in the ERN Evaluation" will be held on April 21, 2023. Find more information here: https://www.eurordis.org/de/exchange-of-good-practice-patient-representatives-ern-evaluation/
Exchange of Good Practice webinar
A EURORDIS webinar on "Patient Representatives Involvement in the ERN Evaluation" will be held on April 21, 2023. Find more information here: https://www.eurordis.org/de/exchange-of-good-practice-patient-representatives-ern-evaluation/
Speakers: Alexandra Cambier, Canada Josh Storrar & United Kingdom Patient’s Perspective
The FEDERG F2F Meeting marks ten years of progress in supporting and researching rare and genetic kidney diseases across Europe.
Únase a Hypofam en Valencia el 28 de septiembre para debatir sobre la hipomagnesemia hereditaria.