FEDERG F2F Meeting

The FEDERG F2F Meeting marks ten years of progress in supporting and researching rare and genetic kidney diseases across Europe.

Federg members meeting is coming up at the Cultural (see the upcoming Events) Centre, Martorell, Barcelona province, Spain on September 14th. They meet again to advance and boost the visibility of our Federation of European groups of patients affected by a rare and/or genetic kidney disease.


10 years of fighting to facilitate European patient groups’ presence at Nephrology Congresses and to spread knowledge, especially about rare, little-known renal diseases, and fighting together to promote improvement and research projects into our pathologies, as well as being a present part of medical trials and in determining our treatments.


2024 is an opportunity to celebrate our first 10 years of fighting together and to promote the Federation. It is a project meeting that aims to plan joint activities between several European federations to promote our pathologies from the patient’s perspective in order to be present in the decision-making process for our care and treatment.


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Events

Patient Partnership Webinar – Unlocking ERN Potential: Disease Specific Measures

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[ONLY IN GERMAN] Patientenkongress 2024 des Nephie e.V. in Hamburg

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[ONLY IN POLISH] National Workshop on Patient Rights - Warsaw

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[ONLY IN GERMAN] Webinar Seltene Nierenerkrankungen - Herausforderungen & Psychosoziale Belastungen

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Speaker: Prof. Max…

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National Workshop on Patient Rights - Brussels

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7th International Workshop on Alport Syndrome

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EURORDIS Webinar: Guide to developing a Patient Journey

This webinar will be on March 20th, 2024 from 15.00 -16.00 CET

Exploring Patient Journeys: Enhancing healthcare services through patient-centered…

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