EJP RD Workshop in Madrid

Rare Diseases Training Workshop - ERN biological samples in Rare Diseases research: Added value and usefulness

The workshop "ERN biological samples in Rare Diseases research: Added value and usefulness" will be in person in Madrid, on 12-13-14 June 2023 at Instituto de Salud Carlos III.

This edition will cover the high value of the ERN biological samples repositories in the rare diseases research, and ways to enhance their benefit across research networks. Different levels will be explored, from biological samples at the healthcare provider, to collaborative networks and a research ecosystem for the final benefit of patients and increase of knowledge on RD. This training is composed of three days.

Two travel fellowships are available to cover one round trip flights and up to two nights of hotel accommodation. Fellowship application form is embedded in the registration form.

Registration deadline is 20th April 2023 at this link.

 


Back

Events

EURODIS Webinar: Patient Representatives Involvement in the ERN Evaluation

Exchange of Good Practice webinar

Read more

7. letno srečanje mreže ERKNet

Letno srečanje mreže ERKNet je dogodek, na katerem zdravstveni delavci in skupine ePAG dva dni razpravljajo o novih raziskovalnih pristopih,…

Read more

49th Certain/ERKNet Workshop

Interdisciplinary Study Group Renal Transplantation in Paediatrics

ONLINE MEETING

Read more

[ONLY IN GERMAN] Familien Nephro Symposium 2023

Das 3. Familien-Nephro-Symposium wird am 13. und 14. Mai 2023 in Heidelberg stattfinden! - Anmeldeschluss ist am 15. April 2023!

Read more

51. letno srečanje Evropske delovne skupine za psihosocialne vidike otrok s kronično odpovedjo ledvic (EWOPA)

EWOPA je multidisciplinarna skupina, ki se ukvarja s psihosocialno oskrbo otrok in mladostnikov s kronično ledvično boleznijo. CKB pri otrocih je…

Read more

[ONLY IN GERMAN] Patiententag für aHUS und C3-Glomerulopathie/MPGN 2023

Das Patiententag für aHUS und C3-Glomerulopathie/MPGN wird am 23. September 2023 in Heidelberg stattfinden! - Anmeldeschluss ist am 30.06.2023.

Read more

[ONLY IN SPANISH] 53 Congreso de la Sociedad Española de Nefrología

Descubra el futuro de la nefrología en el corazón de Palma de Mallorca, del 11 al 13 de noviembre!

Read more

[ONLY IN GERMAN] Wenn es um die Nieren geht

Infotag zum nephrotischen Syndrom

Read more

ERKNet/EURORDIS Webinar: "Patient Involvement in Guidelines" by Matt Johnson

We invite you to attend an insightful webinar delivered by Matt Bolz-Johnson, focusing on patient engagement in guideline development.

Read more

First HLRCC Symposium 2024

Join us on June 20th, 2024, for the first HLRCC Symposium to improve diagnosis and treatment of HLRCC.

Read more