Research Project

Project Title:	CERTAIN Registry
Project Type:	Registry
Disease group(s):	Pediatric kidney transplantation
Project Summary:	Patient registries are a useful tool to measure outcomes and compare the effectiveness of therapies in a specific patient population. High data quality and completeness are therefore advantageous for registry analysis. Data integration from multiple sources may increase completeness of the data. The pediatric renal transplantation registry CERTAIN identified Eurotransplant (ET) and the Collaborative Transplant Study (CTS) as possible partners for data exchange. Import and export interfaces with CTS and ET were implemented. All parties reached their projected goals and benefit from the exchange.
Lead principal investigator(s):	Burkhard Toenshoff, Heidelberg Lars Pape, Essen
Co-investigator(s):	Lutz Weber, Cologne Gema Ariceta, Barcelona
Project Period:	01/2012 - 12/2112
Sponsors:	Industry, Non-profit foundation
Project web page:	www.certain-registry.eu