Research Project

Project Title:

CERTAIN Registry

Project Type:


Disease group(s):

Pediatric kidney transplantation

Project Summary:

Patient registries are a useful tool to measure outcomes and
compare the effectiveness of therapies in a specific patient
population. High data quality and completeness are therefore
advantageous for registry analysis. Data integration from
multiple sources may increase completeness of the data. The
pediatric renal transplantation registry CERTAIN identified
Eurotransplant (ET) and the Collaborative Transplant Study
(CTS) as possible partners for data exchange. Import and
export interfaces with CTS and ET were implemented. All
parties reached their projected goals and benefit from the

Lead principal investigator(s):

Burkhard Toenshoff, Heidelberg
Lars Pape, Essen


Lutz Weber, Cologne
Gema Ariceta, Barcelona

Project Period:

01/2012   -   12/2112


Industry, Non-profit foundation

Project web page:

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