Project Title: |
Natural history of patients with dRTA |
Project Type: |
Registry |
Disease group(s): |
Tubulopathies, Metabolic & stone disorders |
Project Summary: |
Based on ERKNet Registry platform we have built a detailed registry on distal renal tubular acidosis to collect data on long-term outcome of patients with his rare disease. |
Lead principal investigator(s): |
Elena Levtchenko, Amsterdam , Francesco Emma, Rome |
Co-investigator(s): |
Dieter Haffner, Hannover Jun Oh, Hamburg Rosa Vargas-Poussou, Paris Fernando Santos, Oviedo |
Project Period: |
01/2020 - 01/2030 |
Project web page: |
https://www.erknet.org/index.php?id=reg_status |