Research Project

Project Title:	ERK-REG
Project Type:	Registry
Disease group(s):	Hereditary glomerulopathies, Immune glomerulopathies, Tubulopathies, Metabolic & stone disorders, Thrombotic microangiopathies, AD structural kidney disorders, Congenital malformations & ciliopathies, Pediatric CKD & dialysis, Pediatric kidney transplantation
Project Summary:	The European Rare Kidney Disease Registry (ERK-REG) is the first joint research project of the ERKNet Consortium. ERK-REG will provide demographic information about patients with rare kidney diseases treated within the Network, in order to facilitate the identification of potential clinical trial cohorts. In addition, disease specific indicators will be recorded to monitor and benchmark the diagnostic and therapeutic performance, as well as patient outcomes throughout the Network.
Lead principal investigator(s):	Franz Schaefer, Heidelberg
Co-investigator(s):	Jaap Groothoff, Amsterdam Gema Ariceta, Barcelona Aleksandra Zurowska, Gdansk Aude Servais, Paris
Project Period:	03/2018 - 02/2022
Sponsors:	EU
Project web page:	https://erknet.org/index.php?id=reg_about