Research Project

Project Title:	PodoNet SRNS Registry
Project Type:	Registry Adjunct biobank: DNA, Serum, Urine
Disease group(s):	Hereditary glomerulopathies, Immune glomerulopathies
Project Summary:	The PodoNet Registry explores the demographics, causes and prognosis of patients with congenital and steroid resistant nephrotic syndrome. The Registry is open to all clinician scientists who want to contribute information about patients with this rare condition. The clinical and genetic information collected serves to provide an evidence base for diagnostic and therapeutic decision-making, to establish genotype-phenotype correlations in hereditary forms of the disease, and to collect a critical mass of cases and families to foster the search for new genetic entities.
Lead principal investigator(s):	Franz Schaefer, Heidelberg
Co-investigator(s):	, Augustina Jankauskiene, Vilnius Aleksandra Zurowska, Gdansk Monica Bodria, Genoa Jun Oh, Hamburg Bruno Ranchin, Lyon Giovanni Montini, Milan Dieter Haffner, Hannover , Marina Vivarelli, Rome
Project Period:	10/2009 - 09/2022
Sponsors:	EU, National funding agency, Local resources
Project web page:	www.podonet.org