Current Number of Patients enrolled in the ERKNet-Registry


All ERKNet centers
pediatric adult total
total active total active total active
Glomerulopathies 2276 2098 2189 1412 4465 3510
Tubulopathies 795 693 312 215 1107 908
Metabolic nephropathies 307 280 124 95 431 375
Thrombotic microangiopathies 393 316 76 39 469 355
CAKUT 2614 2360 234 132 2848 2492
AD structural diseases 580 499 1445 971 2025 1470
Recessive cystic nephropathies 401 379 96 63 497 442
Rare causes of hypertension 101 98 6 4 107 102
TOTAL 7467 6723 4482 2931 11949 9654
Pediatric CKD and dialysis 6480 6129
Pediatric transplantation 865 839



Current Number of Patients enrolled in the dRTA-Registry


All dRTA centers
pediatric adult total
186 15 201



Current Number of Patients enrolled in the Pediatric SLE Registry


All SLE centers
pediatric adult total
17 1 18



Current Number of Patients enrolled in the EUROCYS Cystinuria Registry


All EUROCYS Cystinuria centers
pediatric adult total
3 4 7


European Reference Networks This website is part of the project / joint action "777304 / ERK-REG" which has received funding from the European Union’s Health Programme (2014-2020)