Current Number of Patients enrolled in the ERKNet-Registry


All ERKNet centers
pediatric adult total
total active total active total active
Glomerulopathies 2726 2437 2500 1432 5226 3869
Tubulopathies 910 797 373 239 1283 1036
Metabolic nephropathies 362 331 132 99 494 430
Thrombotic microangiopathies 483 407 81 38 564 445
CAKUT 3180 2864 256 136 3436 3000
AD structural diseases 705 633 1811 1196 2516 1829
Recessive cystic nephropathies 473 445 101 63 574 508
Rare causes of hypertension 124 116 6 3 130 119
TOTAL 8963 8030 5260 3206 14223 11236
Pediatric CKD and dialysis 7893 7363
Pediatric transplantation 1067 1022


Current Number of Patients enrolled in the dRTA-Registry


All dRTA centers
pediatric adult total
205 16 221


Current Number of Patients enrolled in the Pediatric SLE Registry


All SLE centers
pediatric adult total
54 1 55


Current Number of Patients enrolled in the EUROCYS Cystinuria Registry


All EUROCYS Cystinuria centers
pediatric adult total
9 48 57

European Reference Networks This website is part of the project / joint action "777304 / ERK-REG" which has received funding from the European Union’s Health Programme (2014-2020)