Current Number of Patients enrolled in the ERKNet-Registry


All ERKNet centers
pediatric adult total
total active total active total active
Glomerulopathies 2728 2437 2500 1429 5228 3866
Tubulopathies 910 795 373 239 1283 1034
Metabolic nephropathies 362 330 132 99 494 429
Thrombotic microangiopathies 483 407 81 38 564 445
CAKUT 3181 2868 256 136 3437 3004
AD structural diseases 705 632 1811 1191 2516 1823
Recessive cystic nephropathies 473 444 101 63 574 507
Rare causes of hypertension 124 116 7 3 131 119
TOTAL 8966 8029 5261 3198 14227 11227
Pediatric CKD and dialysis 7894 7362
Pediatric transplantation 1069 1022


Current Number of Patients enrolled in the dRTA-Registry


All dRTA centers
pediatric adult total
205 16 221


Current Number of Patients enrolled in the Pediatric SLE Registry


All SLE centers
pediatric adult total
54 1 55


Current Number of Patients enrolled in the EUROCYS Cystinuria Registry


All EUROCYS Cystinuria centers
pediatric adult total
9 48 57

European Reference Networks This website is part of the project / joint action "777304 / ERK-REG" which has received funding from the European Union’s Health Programme (2014-2020)