Current Number of Patients enrolled in the ERKNet-Registry


All ERKNet centers
pediatric adult total
total active total active total active
Glomerulopathies 2867 2530 2782 1632 5649 4162
Tubulopathies 940 795 386 225 1326 1020
Metabolic nephropathies 381 345 140 99 521 444
Thrombotic microangiopathies 514 423 85 36 599 459
CAKUT 3315 2934 269 135 3584 3069
AD structural diseases 760 667 1899 1234 2659 1901
Recessive cystic nephropathies 483 447 104 61 587 508
Rare causes of hypertension 129 116 8 2 137 118
TOTAL 9389 8257 5673 3424 15062 11681
Pediatric CKD and dialysis 8250 7548
Pediatric transplantation 1126 1064


Current Number of Patients enrolled in the dRTA-Registry


All dRTA centers
pediatric adult total
207 18 225


Current Number of Patients enrolled in the Pediatric SLE Registry


All SLE centers
pediatric adult total
64 1 65


Current Number of Patients enrolled in the EUROCYS Cystinuria Registry


All EUROCYS Cystinuria centers
pediatric adult total
12 55 67

European Reference Networks This website is part of the project / joint action "777304 / ERK-REG" which has received funding from the European Union’s Health Programme (2014-2020)