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ERKReg
The European Rare Kidney Disease Registry


Registry Mission Registry Concept Enrolment by disease Enrolment by center Registry Reports Useful Documents Workflow in ERKReg FAQ Registry manual Data dictionary Orphacode renal diagnoses - list Orphacode renal diagnoses - hierarchical tree List of immunological test items Registry Governance Subregistries Data Access Requests ERKNet Home Page

Useful Documents

 

  • Workflow in ERKReg
  • Frequently Asked Questions (updated March 16, 2021)
  • Registry manual
  • Data dictionary
  • Autoimmune tests catalogue (updated March 16, 2021)
  • Orphacode renal diagnosis catalogue
  • Orphacode renal diagnosis tree
  • Patient Informed Consent forms
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European Reference Networks This website is part of the project / joint action "777304 / ERK-REG" which has received funding from the European Union’s Health Programme (2014-2020)