News

AIRG-France 2023 RESEARCH CALL - Summary

AIRG-France, patient advocacy group dedicated to the information and research on genetic kidney diseases, is launching its annual research call.


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MUC 1 manuscript published online in Kidney International

Novel MUC1 variant identified by massively parallel sequencing explains interstitial kidney disease in a large Dutch family. The article was recently…


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Rare Diseases Training

Statistical and Operational Challenges with Master Protocols


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Events

EJP RD Workshop in Madrid

Rare Diseases Training Workshop - ERN biological samples in Rare Diseases research: Added value and usefulness

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51th Annual Meeting of the European Working Group on Psychosocial Aspects of Children with Chronic Renal Failure (EWOPA)

EWOPA is a multidisciplinary group interested in the psychosocial care of children and adolescents with chronic kidney disease (CKD). Childhood CKD is…

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EJP RD - ERN Workshop

EJP RD - European Joint Programme on Rare Diseases - EJP RD – ERN Workshop on Fetal and Postnatal multidisciplinary management in RD (Myelomeningocele…

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