Events

Invitation to the International & German aHUS, C3G, and IC-MPGN Family Weekend

Join Us in Heidelberg!

Dear friends and families living with aHUS, C3G, or IC-MPGN –

We warmly invite you to a special Family Weekend full of…

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AIRP Celebrates 20 Years

Join AIRP in celebrating 20 years of progress, knowledge, and community!

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The 2025 International Workshop on Alport Syndrome - Beijing

An opportunity for the Alport community to connect, update and discuss the latest research.

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National Workshop on Patient Rights - Oradea

You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Oradea on February 5th!

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National Workshop on Patient Rights - Brussels

You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Brussels on November 19th!

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[ONLY IN GERMAN] Webinar Seltene Nierenerkrankungen - Herausforderungen & Psychosoziale Belastungen

Der Bundesverband Niere e.V. lädt ein zum Webinar über seltene Nierenerkrankungen - Herausforderungen & Psychosoziale Belastungen

Speaker: Prof. Max…

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[ONLY IN POLISH] National Workshop on Patient Rights - Warsaw

You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Warsaw on October 9th!

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[ONLY IN GERMAN] Patientenkongress 2024 des Nephie e.V. in Hamburg

Nephie e.V. lädt zum Patientenkongress nach Hamburg ein. Sie erwartet ein Programm mit Vorträgen und Austausch mit anderen Betroffenen und Experten.

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[ONLY IN SPANISH] Conferencia sobre la hipomagnesemia hereditaria

Únase a Hypofam en Valencia el 28 de septiembre para debatir sobre la hipomagnesemia hereditaria.

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National Workshop on Patient Rights - Athens

You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Athens on September 17th!

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