The Cystinosis Group Netherlands & Flanders celebrates its 25th anniversary with a family event bringing together children and adults with cystinosis, their families, and caregivers. The meeting will be held in Dutch. For English-speaking families, translation will be provided.
The program includes:
• Round table session for new families and parents of young children with cystinosis
• Updates on research plans supported by the Postcode Lottery grant
• Special anniversary activities and opportunities to share experiences
• Concluding with a winter barbecue and a performance by Victor Mids (Mindf*ck)
Practical information:
• Childcare is available for children aged 4–12
• Adventure activities for children aged 12+
• English interpretation available
• Free parking at the venue
For more information on the prgramme check the meeting flyer or contact cystinose@ziggo.nl
