Find interesting and exciting updates on our network and its activities in this year's summer newsletter.

Have a nice summer holiday!

March 9 marks World Kidney Day 2023, a global initiative to raise awareness of the importance of kidney health and promote early detection and…

We are pleased to announce that Christiane Mockenhaupt, Renée de Wildt and Tina Verscheure are now joining the European Patient Advocacy Groups…

A German patient group invites you to the International Patient's Conference - a weekend in Berlin concerning rare kidney diseases.

You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Athens on September 17th!

Nephie e.V. lädt zum Patientenkongress nach Hamburg ein. Sie erwartet ein Programm mit Vorträgen und Austausch mit anderen Betroffenen und Experten.

Der Bundesverband Niere e.V. lädt ein zum Webinar über seltene Nierenerkrankungen - Herausforderungen & Psychosoziale Belastungen

Speaker: Prof. Max…