ERKNet Project Office

Prof. Dr. Franz Schaefer, ERKNet Coordinator

Dr. Tanja Wlodkowski (currently in maternity leave), ERKNet Project Manager

Dr. Stefanie Häberle, ERKNet Project Manager

Alicia Armbruster, ERKNet Project Manager

Katharina Lehmann, Network Assistant


Vera Cornelius, Patient Engagement Manager


Im Neuenheimer Feld 130.3

D-69120 Heidelberg

Tel: +49 (0)6221/56-34191

Email: patients[at]



ERKNet is a European Reference Network (ERN) approved by the ERN Board of Member States. The ERNs are funded by the European Union within the framework of the "EU4Health Programme 2021-2027". For more information about the ERNs and the EU health strategy, please visit

The content on this website represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.