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Haberler

ERKNet Yaz Bülteni 2023

Bu yılın yaz bülteninde ağımız ve faaliyetleri hakkında ilginç ve heyecan verici güncellemeler bulabilirsiniz.

İyi tatiller!


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World Kidney Day 2023

9 Mart, böbrek sağlığının önemi konusunda farkındalığı arttırmak ve böbrek hastalığının erken teşhisi ve önlenmesini teşvik etmek için küresel bir…


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ERKNet'in yeni ePAGS temsilcilerine hoş geldiniz diyoruz

Christiane Mockenhaupt, Renée de Wildt ve Tina Verscheure'nin Avrupa Hasta Savunuculuk Gruplarına (ePAGs) katıldığını duyurmaktan memnuniyet…


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Yaklaşan Etkinlikler

Patient Partnership Webinar – Unlocking ERN Potential: Disease Specific Measures

Learn more about the European Reference Networks and how to unlock their potential for patients with rare diseases.

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CNE International Conference

The CNE international conference is hosted every second year and brings together scientists, clinicians, families and adult patients. Attendees from…

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Complement Weekend: International Patient’s Conference on aHUS and C3 Glomerulopathy/MPGN

A German patient group invites you to the International Patient's Conference - a weekend in Berlin concerning rare kidney diseases.

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[ONLY IN GERMAN] Patientenkongress 2024 des Nephie e.V. in Hamburg

Nephie e.V. lädt zum Patientenkongress nach Hamburg ein. Sie erwartet ein Programm mit Vorträgen und Austausch mit anderen Betroffenen und Experten.

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