Bartter Syndrome Patient Journey

- developed from patients for patients -

Bartter Syndrome takes individuals on a challenging medical journey characterized by ongoing electrolyte imbalances and kidney abnormalities. From initial symptoms such as excessive thirst, muscle cramps and fatigue to diagnosis, which includes genetic testing, patients often have to navigate a complex landscape of medications and dietary adjustments to manage their condition. Regular check-ups and collaboration with healthcare professionals are important milestones in the journey of people living with Bartter's disease.
As the journeys between children and adults often differ, the ERKNet patient representatives have created both versions. 

Bartter Syndrome Adults

Bartter Syndrome Children