Events
Invitation to the International & German aHUS, C3G, and IC-MPGN Family Weekend
Join Us in Heidelberg!
Dear friends and families living with aHUS, C3G, or IC-MPGN –
We warmly invite you to a special Family Weekend full of…
25th Anniversary of the Cystinosis Group Netherlands & Flanders
The Cystinosis Group Netherlands & Flanders celebrates its 25th anniversary with a family event bringing together children and adults with cystinosis,…
VII Annual Conference on Hereditary Hypomagnesemias
Hipofam is pleased to invite patients, families, and professionals to the 7th edition of the annual conference on hereditary hypomagnesemias. The…
[ONLY IN GERMAN] Patientenkongress 2025 des Nephie e.V. in Dachau
Nephie e.V. lädt zum Patientenkongress nach Dachau ein. Sie erwartet ein Programm mit Vorträgen und Austausch mit anderen Betroffenen und Experten.
The 2025 International Workshop on Alport Syndrome - Beijing
An opportunity for the Alport community to connect, update and discuss the latest research.
National Workshop on Patient Rights - Oradea
You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Oradea on February 5th!
National Workshop on Patient Rights - Brussels
You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Brussels on November 19th!
[ONLY IN GERMAN] Webinar Seltene Nierenerkrankungen - Herausforderungen & Psychosoziale Belastungen
Der Bundesverband Niere e.V. lädt ein zum Webinar über seltene Nierenerkrankungen - Herausforderungen & Psychosoziale Belastungen
Speaker: Prof. Max…
[ONLY IN POLISH] National Workshop on Patient Rights - Warsaw
You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Warsaw on October 9th!