Events

Patient Partnership Webinar – Unlocking ERN Potential: Disease Specific Measures

Learn more about the European Reference Networks and how to unlock their potential for patients with rare diseases.

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CNE International Conference

The CNE international conference is hosted every second year and brings together scientists, clinicians, families and adult patients. Attendees from…

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Complement Weekend: International Patient’s Conference on aHUS and C3 Glomerulopathy/MPGN

A German patient group invites you to the International Patient's Conference - a weekend in Berlin concerning rare kidney diseases.

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[ONLY IN GERMAN] Patientenkongress 2024 des Nephie e.V. in Hamburg

Nephie e.V. lädt zum Patientenkongress nach Hamburg ein. Sie erwartet ein Programm mit Vorträgen und Austausch mit anderen Betroffenen und Experten.

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[ONLY IN GERMAN] Webinar Seltene Nierenerkrankungen - Herausforderungen & Psychosoziale Belastungen

Der Bundesverband Niere e.V. lädt ein zum Webinar über seltene Nierenerkrankungen - Herausforderungen & Psychosoziale Belastungen

Speaker: Prof. Max…

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Events

7th International Workshop on Alport Syndrome

This workshop will spotlight the latest developments in Alport Syndrome.

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EURORDIS Webinar: Guide to developing a Patient Journey

This webinar will be on March 20th, 2024 from 15.00 -16.00 CET

Exploring Patient Journeys: Enhancing healthcare services through patient-centered…

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