Events
Patient Partnership Webinar – Unlocking ERN Potential: Disease Specific Measures
Learn more about the European Reference Networks and how to unlock their potential for patients with rare diseases.
CNE International Conference
The CNE international conference is hosted every second year and brings together scientists, clinicians, families and adult patients. Attendees from…
Complement Weekend: International Patient’s Conference on aHUS and C3 Glomerulopathy/MPGN
A German patient group invites you to the International Patient's Conference - a weekend in Berlin concerning rare kidney diseases.
National Workshop on Patient Rights - Athens
You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Athens on September 17th!
[ONLY IN GERMAN] Patientenkongress 2024 des Nephie e.V. in Hamburg
Nephie e.V. lädt zum Patientenkongress nach Hamburg ein. Sie erwartet ein Programm mit Vorträgen und Austausch mit anderen Betroffenen und Experten.
[ONLY IN POLISH] National Workshop on Patient Rights - Warsaw
You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Warsaw on October 9th!
[ONLY IN GERMAN] Webinar Seltene Nierenerkrankungen - Herausforderungen & Psychosoziale Belastungen
Der Bundesverband Niere e.V. lädt ein zum Webinar über seltene Nierenerkrankungen - Herausforderungen & Psychosoziale Belastungen
Speaker: Prof. Max…
National Workshop on Patient Rights - Brussels
You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Brussels on November 19th!
7th International Workshop on Alport Syndrome
This workshop will spotlight the latest developments in Alport Syndrome.
EURORDIS Webinar: Guide to developing a Patient Journey
This webinar will be on March 20th, 2024 from 15.00 -16.00 CET
Exploring Patient Journeys: Enhancing healthcare services through patient-centered…