Events
3rd YNP (ERA) - YPNN (ESPN) joint e-seminar: IgA nephropathy, from childhood to adulthood including transition
Speakers: Alexandra Cambier, Canada Josh Storrar & United Kingdom Patient’s Perspective
CNE International Conference
The CNE international conference is hosted every second year and brings together scientists, clinicians, families and adult patients. Attendees from…
Patient Partnership Webinar – Unlocking ERN Potential: Disease Specific Measures
Learn more about the European Reference Networks and how to unlock their potential for patients with rare diseases.
First HLRCC Symposium 2024
Join us on June 20th, 2024, for the first HLRCC Symposium to improve diagnosis and treatment of HLRCC.
ERKNet/EURORDIS Webinar: "Patient Involvement in Guidelines" by Matt Johnson
We invite you to attend an insightful webinar delivered by Matt Bolz-Johnson, focusing on patient engagement in guideline development.
EURORDIS Webinar: Guide to developing a Patient Journey
This webinar will be on March 20th, 2024 from 15.00 -16.00 CET
Exploring Patient Journeys: Enhancing healthcare services through patient-centered…
7th International Workshop on Alport Syndrome
This workshop will spotlight the latest developments in Alport Syndrome.
[ONLY IN SPANISH] 53 Congreso de la Sociedad Española de Nefrología
Descubra el futuro de la nefrología en el corazón de Palma de Mallorca, del 11 al 13 de noviembre!
[ONLY IN GERMAN] Patiententag für aHUS und C3-Glomerulopathie/MPGN 2023
Das Patiententag für aHUS und C3-Glomerulopathie/MPGN wird am 23. September 2023 in Heidelberg stattfinden! - Anmeldeschluss ist am 30.06.2023.