Events
[ONLY IN GERMAN] Patientenkongress 2024 des Nephie e.V. in Hamburg
Nephie e.V. lädt zum Patientenkongress nach Hamburg ein. Sie erwartet ein Programm mit Vorträgen und Austausch mit anderen Betroffenen und Experten.
[ONLY IN SPANISH] Conferencia sobre la hipomagnesemia hereditaria
Únase a Hypofam en Valencia el 28 de septiembre para debatir sobre la hipomagnesemia hereditaria.
National Workshop on Patient Rights - Athens
You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Athens on September 17th!
Complement Weekend: International Patient’s Conference on aHUS and C3 Glomerulopathy/MPGN
A German patient group invites you to the International Patient's Conference - a weekend in Berlin concerning rare kidney diseases.
FEDERG F2F Meeting
The FEDERG F2F Meeting marks ten years of progress in supporting and researching rare and genetic kidney diseases across Europe.
3rd YNP (ERA) - YPNN (ESPN) joint e-seminar: IgA nephropathy, from childhood to adulthood including transition
Speakers: Alexandra Cambier, Canada Josh Storrar & United Kingdom Patient’s Perspective
CNE International Conference
The CNE international conference is hosted every second year and brings together scientists, clinicians, families and adult patients. Attendees from…
Patient Partnership Webinar – Unlocking ERN Potential: Disease Specific Measures
Learn more about the European Reference Networks and how to unlock their potential for patients with rare diseases.
First HLRCC Symposium 2024
Join us on June 20th, 2024, for the first HLRCC Symposium to improve diagnosis and treatment of HLRCC.
ERKNet/EURORDIS Webinar: "Patient Involvement in Guidelines" by Matt Johnson
We invite you to attend an insightful webinar delivered by Matt Bolz-Johnson, focusing on patient engagement in guideline development.