News
aHUS Alliance - aHUS Awareness Day 2025 Video
aHUS Awareness Day 2025 – Celebrating global stories of strength and the single best decisions made while battling aHUS.
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[Plain Summary Available] Real-World Study confirms the safety and effectiveness of switching to Ravulizumab from Eculizumab in Patients with aHUS
Plain language summary of publication available in multiple languages
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Welcoming New ePAGs to the ERKNet Community
We are thrilled to welcome Mariann Molnár, Ana Leticia Rotaeche, Monika Reichegger, and Sarah Bingham as new ePAG representatives of ERKNet. Their…
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Upcoming Events
VII Annual Conference on Hereditary Hypomagnesemias
Hipofam is pleased to invite patients, families, and professionals to the 7th edition of the annual conference on hereditary hypomagnesemias. The…
25th Anniversary of the Cystinosis Group Netherlands & Flanders
The Cystinosis Group Netherlands & Flanders celebrates its 25th anniversary with a family event bringing together children and adults with cystinosis,…
Invitation to the International & German aHUS, C3G, and IC-MPGN Family Weekend
Join Us in Heidelberg!
Dear friends and families living with aHUS, C3G, or IC-MPGN –
We warmly invite you to a special Family Weekend full of…