ERKNet/EURORDIS Webinar: "Patient Involvement in Guidelines" by Matt Johnson

We invite you to attend an insightful webinar delivered by Matt Bolz-Johnson, focusing on patient engagement in guideline development.

We're delighted to announce that Matt Bolz-Johnson from EURORDIS will be joining us at the ERKNet 8th Annual Meeting and will be hosting a webinar on Monday, April 22nd.

Since joining EURORDIS in 2014, Matt Bolz-Johnson has been actively engaged in various advocacy initiatives, including those concerning the European Reference Networks, Mental Health and Advanced Therapies. His pivotal role in establishing the ERNs includes spearheading the development of their assessment framework and supporting the rare disease community in shaping their development and implementation.

In the upcoming webinar 'Patient Involvement in Guidelines' on Monday, April 22nd 2024 at 17:30-18:15 (CET), Matt will discuss how patients can contribute effectively during the development phase and he'll also explore ways clinicians can encourage patients to get involved.

You're welcome to sign up and join the webinar. Please register here


Back

Events

EURODIS Webinar: Patient Representatives Involvement in the ERN Evaluation

Exchange of Good Practice webinar

Read more

7th ERKNet Annual Meeting

The ERKNet Annual Meeting is an event where healthcare professionals and ePAGs spend 2 days discussing new research approaches, sharing knowledge and…

Read more

49th Certain/ERKNet Workshop

Interdisciplinary Study Group Renal Transplantation in Paediatrics

ONLINE MEETING

Read more

[ONLY IN GERMAN] Familien Nephro Symposium 2023

Das 3. Familien-Nephro-Symposium wird am 13. und 14. Mai 2023 in Heidelberg stattfinden! - Anmeldeschluss ist am 15. April 2023!

Read more

51th Annual Meeting of the European Working Group on Psychosocial Aspects of Children with Chronic Renal Failure (EWOPA)

EWOPA is a multidisciplinary group interested in the psychosocial care of children and adolescents with chronic kidney disease (CKD). Childhood CKD is…

Read more

[ONLY IN GERMAN] Patiententag für aHUS und C3-Glomerulopathie/MPGN 2023

Das Patiententag für aHUS und C3-Glomerulopathie/MPGN wird am 23. September 2023 in Heidelberg stattfinden! - Anmeldeschluss ist am 30.06.2023.

Read more

[ONLY IN SPANISH] 53 Congreso de la Sociedad Española de Nefrología

Descubra el futuro de la nefrología en el corazón de Palma de Mallorca, del 11 al 13 de noviembre!

Read more

[ONLY IN GERMAN] Wenn es um die Nieren geht

Infotag zum nephrotischen Syndrom

Read more

ERKNet/EURORDIS Webinar: "Patient Involvement in Guidelines" by Matt Johnson

We invite you to attend an insightful webinar delivered by Matt Bolz-Johnson, focusing on patient engagement in guideline development.

Read more

7th International Workshop on Alport Syndrome

This workshop will spotlight the latest developments in Alport Syndrome.

Read more