ePAG temsilcilerimiz hakkında tüm bilgiler
| Çalışma Grubu | ePAG Temsilcisi | Hasta Organizasyonu | Ülke | İletişim | Website |
| ERN Yönetim Kurulu | Susana Carvajal Arjona | HipoFam | İspanya | s.carvajal@hipofam.org | |
| Uwe Korst | Bundesverband Niere e.V. | Almanya | bundesverband-niere.de | |
Hereditary glomerulopathies | Heidi Zealey | Alport UK | İngiltere | info@alportuk.org | |
Immune glomerulopathies | Marieke van Meel | NephcEurope | Avrupa | mvanmeel@casema.nl | |
| Johanna Rohlfing | Nephie e.V. | Almanya | nephieev@googlemail.com | |
Tubulopathies | Virginia Guillon | Gitelbart Association | Fransa | contact@gitelbart.fr | |
| Etienne Cosyns | AIRG Belgium | Belçika | etienne-cosyns@live.com | |
| Antonio Cabrera Cantero | HipoFam | İspanya | consultas@hipofam.org | |
| Susana Carvajal Arjona | HipoFam | İspanya | s.carvajal@hipofam.org | |
Thrombotic mircoangiopathies | Christiane Mockenhaupt | MPGN und aHUS e.V. | Almanya | ||
| Francisco Monfort | ASHUA | İspanya | fmonfort@ashua.es | |
| Mireira Vicenta Carratalá Ríos | ASHUA | İspanya | mcarratala@ashua.es | |
| Renée de Wildt | NVN | Hollanda | dewildt@nvn.nl | |
CAKUT & Ciliopathies | Tess Harris | PKD UK | İngiltere | ||
Autosomal dominant renal structural disorders | Tess Harris | PKD UK | İngiltere | tess.harris@pkdcharity.org.uk | |
| Flavia Galletti | AIRP | İtalya | flaviag.airp@renepolicistico.it | |
| Uwe Korst | Bundesverband Niere e.V. | Almanya | korst@rare-kidney.de | bundesverband-niere.de |
| Karlheinz Steinecker | AIRG France | Fransa | karlheinz.steinecker@nordnet.fr | |
| Christian Scheidler | ADTKD | Almanya | Christian.Scheidler@outlook.de | |
| Michel Schenkel | AIRG Belgium | Belçika | michel.schenkel@skynet.be | |
Metabolic nephropathies | Claudia Sproedt | Cystinose Selbsthilfe e.V. & Cystinosis Network Europe | Almanya | csproedt@leben-eben.com | |
| Marjolein Bos | Dutch and Flemish Cystinosis Group & Cystinosis Network Europe | Hollanda | marjoleinbos@ziggo.nl | |
| David van Bennekom | - | Hollanda | davidvanbennekom@gmail.com | - |
| Tina Verschuere | - | Belçika | - | |
Pediatric CKD & Dialysis | Claudia Sproedt | Cystinose Selbsthilfe e.V. & Cystinosis Network Europe | Almanya | csproedt@leben-eben.com | |
| Manuel Arellano Armisen | Federacion Nacional ALCER (FNA) | İspanya | marellano@alcer.org |