https://www.adtkd.de/
@ADTKD_MUC1
http://www.ahus-selbsthilfe.de
aHUS Alliance
Atypical HUS Clinical Channel
https://www.aig-aig.it/author/cesare-mazzotti/
@AIG_Italia
AIGlico - Associazione Italiana Glicogenosi
www.airg-belgique.org
AIRG Belique
https://airg-e.org/
@airg_e
AIRG España
AIRG-E. Asociación Información Enfermedades Renales Genéticas
https://www.airg-belgique.org/fr/
aned-onlus.it
@AnedOnlus
ANED onlus
http://www.alportuk.org/
https://ashua.es/
@ashua_spain
ANUSHA SHUa ESPANA
SHUa Ashua
https://somosfabry.com/
MPS España
https://www.ilsognodistefano.it
Associazione Il sogno di Stefano
https://gitelbart.fr/
@Gitelbart1
https://www.asbbi.it
Associazione Sindrome di Bardet-Biedl Italia
https://www.alport.it/
Associazione Sindrome di Alport
https://bbsuk.org.uk/
@LMBBS1
Bardet-Biedl Syndrome UK
BBS UK
https://www.renepolicistico.it/
@AIRPonlus
AIRP
AIRP - Associazione Italiana Rene Policistico onlus - ADPKD ARPKD
https://argeniere.at/
https://www.bundesverband-niere.de/
https://www.cystinose-selbsthilfe.de/
https://cystinosis.eu/
https://cystinose.nl/
Cystinose
https://fabry-shg.org
www.alcer.org
http://hipofam.org/
@hipofam
https://lunne.fr/
@Lithiases_LUNNE
LUNNE lithiase
LUNNE-Lithiase Urinaire Network
https://www.nephie.de/
http://nephceurope.eu
@NephcEurope
NephcEurope
https://nephrokids.de/
Nephrokids
nephrokids
https://www.nierenkinder-berlin.de/
njurforbundet.se
@Njurforbundet
Njurförbundet
https://www.nvn.nl/
@NierpatientenNL
Nierpatiënten Vereniging Nederland
http://www.ph-selbsthilfe.de/
PH-Selbsthilfe e.V.
https://pkdcharity.org.uk/about-arpkd
@PKDCharity
@pkdcharity
pkdcharity
https://pkdcure.de/
@PKD_eV
@pkd_zystennierenev
PKD Familiäre Zystennieren e.V.
PKD Familiäre Zystennieren
sallsyntadiagnoser.se
@sallsynt
@sallsyntadiagnoser
Sällsynta Diagnoser
Sällsynta diagnoser/Rare diseases Sweden
https://www.hippel-lindau.de
@vhl_germany
Verein VHL- betroffener Familien e.V.
RareConnect.org is safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages.
Alstrom Syndrome
Alagille Syndrome
Amiloidosis
Atypical Hemolytic-uremic-syndrome
Behçet Syndrome
Cyoglobulinemia
Cystinosis
Familial Mediterranean Fever
Hereditary Rickets
Lowe Syndrome
Nephrotic Syndrome
Vasculitis
Von Hippel Lindau