Events

Invitation to the International & German aHUS, C3G, and IC-MPGN Family Weekend

Join Us in Heidelberg!

Dear friends and families living with aHUS, C3G, or IC-MPGN –

We warmly invite you to a special Family Weekend full of…

Weiterlesen

25th Anniversary of the Cystinosis Group Netherlands & Flanders

The Cystinosis Group Netherlands & Flanders celebrates its 25th anniversary with a family event bringing together children and adults with cystinosis,…

Weiterlesen

VII Annual Conference on Hereditary Hypomagnesemias

Hipofam is pleased to invite patients, families, and professionals to the 7th edition of the annual conference on hereditary hypomagnesemias. The…

Weiterlesen

Patientenkongress 2025 des Nephie e.V. in Dachau

Nephie e.V. lädt zum Patientenkongress nach Dachau ein. Sie erwartet ein Programm mit Vorträgen und Austausch mit anderen Betroffenen und Experten.

Weiterlesen

AIRP Celebrates 20 Years

Join AIRP in celebrating 20 years of progress, knowledge, and community!

Weiterlesen

The 2025 International Workshop on Alport Syndrome - Beijing

An opportunity for the Alport community to connect, update and discuss the latest research.

Weiterlesen

National Workshop on Patient Rights - Oradea

You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Oradea on February 5th!

Weiterlesen

National Workshop on Patient Rights - Brussels

You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Brussels on November 19th!

Weiterlesen

Webinar Seltene Nierenerkrankungen - Herausforderungen & Psychosoziale Belastungen

Der Bundesverband Niere e.V. lädt ein zum Webinar über seltene Nierenerkrankungen - Herausforderungen & Psychosoziale Belastungen

Speaker: Prof. Max…

Weiterlesen

[ONLY IN POLISH] National Workshop on Patient Rights - Warsaw

You are invited to a one-day workshop on Cross-Border Healthcare, Patients’ Rights, and Rare Diseases in Warsaw on October 9th!

Weiterlesen