Events
VII Annual Conference on Hereditary Hypomagnesemias
Hipofam is pleased to invite patients, families, and professionals to the 7th edition of the annual conference on hereditary hypomagnesemias. The…
25th Anniversary of the Cystinosis Group Netherlands & Flanders
The Cystinosis Group Netherlands & Flanders celebrates its 25th anniversary with a family event bringing together children and adults with cystinosis,…
Invitation to the International & German aHUS, C3G, and IC-MPGN Family Weekend
Join Us in Heidelberg!
Dear friends and families living with aHUS, C3G, or IC-MPGN –
We warmly invite you to a special Family Weekend full of…
Events
EURORDIS Webinar: Guide to developing a Patient Journey
This webinar will be on March 20th, 2024 from 15.00 -16.00 CET
Exploring Patient Journeys: Enhancing healthcare services through patient-centered…
3rd YNP (ERA) - YPNN (ESPN) joint e-seminar: IgA nephropathy, from childhood to adulthood including transition
Speakers: Alexandra Cambier, Canada Josh Storrar & United Kingdom Patient’s Perspective
FEDERG F2F Meeting
The FEDERG F2F Meeting marks ten years of progress in supporting and researching rare and genetic kidney diseases across Europe.
[ONLY IN SPANISH] Conferencia sobre la hipomagnesemia hereditaria
Únase a Hypofam en Valencia el 28 de septiembre para debatir sobre la hipomagnesemia hereditaria.
The 2025 International Workshop on Alport Syndrome - Beijing
An opportunity for the Alport community to connect, update and discuss the latest research.
AIRP Celebrates 20 Years
Join AIRP in celebrating 20 years of progress, knowledge, and community!
Patientenkongress 2025 des Nephie e.V. in Dachau
Nephie e.V. lädt zum Patientenkongress nach Dachau ein. Sie erwartet ein Programm mit Vorträgen und Austausch mit anderen Betroffenen und Experten.