FEDERG F2F Meeting

The FEDERG F2F Meeting marks ten years of progress in supporting and researching rare and genetic kidney diseases across Europe.

Federg members meeting is coming up at the Cultural (see the upcoming Events) Centre, Martorell, Barcelona province, Spain on September 14th. They meet again to advance and boost the visibility of our Federation of European groups of patients affected by a rare and/or genetic kidney disease.


10 years of fighting to facilitate European patient groups’ presence at Nephrology Congresses and to spread knowledge, especially about rare, little-known renal diseases, and fighting together to promote improvement and research projects into our pathologies, as well as being a present part of medical trials and in determining our treatments.


2024 is an opportunity to celebrate our first 10 years of fighting together and to promote the Federation. It is a project meeting that aims to plan joint activities between several European federations to promote our pathologies from the patient’s perspective in order to be present in the decision-making process for our care and treatment.


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Events

EURORDIS Webinar: Guide to developing a Patient Journey

This webinar will be on March 20th, 2024 from 15.00 -16.00 CET

Exploring Patient Journeys: Enhancing healthcare services through patient-centered…

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3rd YNP (ERA) - YPNN (ESPN) joint e-seminar: IgA nephropathy, from childhood to adulthood including transition

Speakers: Alexandra Cambier, Canada Josh Storrar & United Kingdom Patient’s Perspective

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FEDERG F2F Meeting

The FEDERG F2F Meeting marks ten years of progress in supporting and researching rare and genetic kidney diseases across Europe.

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[ONLY IN SPANISH] Conferencia sobre la hipomagnesemia hereditaria

Únase a Hypofam en Valencia el 28 de septiembre para debatir sobre la hipomagnesemia hereditaria.

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The 2025 International Workshop on Alport Syndrome - Beijing

An opportunity for the Alport community to connect, update and discuss the latest research.

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AIRP Celebrates 20 Years

Join AIRP in celebrating 20 years of progress, knowledge, and community!

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Patientenkongress 2025 des Nephie e.V. in Dachau

Nephie e.V. lädt zum Patientenkongress nach Dachau ein. Sie erwartet ein Programm mit Vorträgen und Austausch mit anderen Betroffenen und Experten.

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VII Annual Conference on Hereditary Hypomagnesemias

Hipofam is pleased to invite patients, families, and professionals to the 7th edition of the annual conference on hereditary hypomagnesemias. The…

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25th Anniversary of the Cystinosis Group Netherlands & Flanders

The Cystinosis Group Netherlands & Flanders celebrates its 25th anniversary with a family event bringing together children and adults with cystinosis,…

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Invitation to the International & German aHUS, C3G, and IC-MPGN Family Weekend

Join Us in Heidelberg!

Dear friends and families living with aHUS, C3G, or IC-MPGN –

We warmly invite you to a special Family Weekend full of…

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