Todas as informações sobre os nossos representantes ePAG

Grupo de trabalho	Representante da ePAG	Organização de Pacientes	País	Contacto	Website
Conselho ERN	Susana Carvajal Arjona	HipoFam	Espanha	s.carvajal@hipofam.org	hipofam.org
	Uwe Korst	Bundesverband Niere e.V.	Alemanha	korst@rare-kidney.de	bundesverband-niere.de
Hereditary glomerulopathies	Heidi Zealey	Alport UK	Reino Unido	info@alportuk.org	alportuk.org
Immune glomerulopathies	Marieke van Meel	NephcEurope	Europa	mvanmeel@casema.nl	nephceurope.eu
	Johanna Rohlfing	Nephie e.V.	Alemanha	nephieev@googlemail.com	nephie.de
Tubulopathies	Virginia Guillon	Gitelbart Association	França	contact@gitelbart.fr	gitelbart.fr
	Etienne Cosyns	AIRG Belgium	Bélgica	etienne-cosyns@live.com	airg-belgique.org
	Antonio Cabrera Cantero	HipoFam	Espanha	consultas@hipofam.org	hipofam.org
	Susana Carvajal Arjona	HipoFam	Espanha	s.carvajal@hipofam.org	hipofam.org
Thrombotic mircoangiopathies	Christiane Mockenhaupt	MPGN und aHUS e.V.	Alemanha	christiane.mockenhaupt[at]ahus-selbsthilfe.de	ahus-selbsthilfe.de
	Francisco Monfort	ASHUA	Espanha	fmonfort@ashua.es	ashua.es
	Mireira Vicenta Carratalá Ríos	ASHUA	Espanha	mcarratala@ashua.es	ashua.es
	Renée de Wildt	NVN	Holanda	dewildt@nvn.nl	nvn.nl
CAKUT & Ciliopathies	Tess Harris	PKD UK	Reino Unido	tess.harris@pkdcharity.org.uk	pkdcharity.org.uk
Autosomal dominant renal structural disorders	Tess Harris	PKD UK	Reino Unido	tess.harris@pkdcharity.org.uk	pkdcharity.org.uk
	Flavia Galletti	AIRP	Itália	flaviag.airp@renepolicistico.it	renepolicistico.it
	Uwe Korst	Bundesverband Niere e.V.	Alemanha	korst@rare-kidney.de	bundesverband-niere.de
	Karlheinz Steinecker	AIRG France	França	karlheinz.steinecker@nordnet.fr	airg-france.fr
	Christian Scheidler	ADTKD	Alemanha	Christian.Scheidler@outlook.de	adtkd.de
	Michel Schenkel	AIRG Belgium	Bélgica	michel.schenkel@skynet.be	airg-belgique.org
Metabolic nephropathies	Claudia Sproedt	Cystinose Selbsthilfe e.V. & Cystinosis Network Europe	Alemanha	csproedt@leben-eben.com	cystinose-selbsthilfe.de cystinosis-europe.eu
	Marjolein Bos	Dutch and Flemish Cystinosis Group & Cystinosis Network Europe	Holanda	marjoleinbos@ziggo.nl	cystinose.nl cystinosis-europe.eu
	David van Bennekom	-	Holanda	davidvanbennekom@gmail.com	-
	Tina Verschuere	-	Bélgica	tverschuere@hotmail.com	-
Pediatric CKD & Dialysis	Claudia Sproedt	Cystinose Selbsthilfe e.V. & Cystinosis Network Europe	Alemanha	csproedt@leben-eben.com	cystinose-selbsthilfe.de cystinosis-europe.eu
	Manuel Arellano Armisen	Federacion Nacional ALCER (FNA)	Espanha	marellano@alcer.org	https://alcer.org