Toate informațiile despre reprezentanții noștri ePAG

Grupul de lucru	Reprezentantul ePAG	Organizația de pacienți	Țară	Contactați	Website
Consiliul ERN	Susana Carvajal Arjona	HipoFam	Spania	s.carvajal[at]hipofam.org	hipofam.org
	Uwe Korst	Bundesverband Niere e.V.	Germania	korst[at]rare-kidney.de	bundesverband-niere.de
Hereditary glomerulopathies	Heidi Zealey	Alport UK	Regatul Unit	info[at]alportuk.org	alportuk.org
Immune glomerulopathies	Marieke van Meel	NephcEurope	Europa	mvanmeel[at]casema.nl	nephceurope.eu
	Johanna Rohlfing	Nephie e.V.	Germania	nephieev[at]googlemail.com	nephie.de
Tubulopathies	Virginia Guillon	Gitelbart Association	Franța	contact[at]gitelbart.fr	gitelbart.fr
	Etienne Cosyns	AIRG Belgium	Belgia	etienne-cosyns[at]live.com	airg-belgique.org
	Antonio Cabrera Cantero	HipoFam	Spania	consultas[at]hipofam.org	hipofam.org
	Susana Carvajal Arjona	HipoFam	Spania	s.carvajal[at]hipofam.org	hipofam.org
Thrombotic mircoangiopathies	Christiane Mockenhaupt	MPGN und aHUS e.V.	Germania	christiane.mockenhaupt[at]ahus-selbsthilfe.de	ahus-selbsthilfe.de
	Francisco Monfort	ASHUA	Spania	fmonfort[at]ashua.es	ashua.es
	Mireira Vicenta Carratalá Ríos	ASHUA	Spania	mcarratala[at]ashua.es	ashua.es
	Renée de Wildt	NVN	Olanda	dewildt[at]nvn.nl	nvn.nl
CAKUT & Ciliopathies	Tess Harris	PKD UK	Regatul Unit	tess.harris[at]pkdcharity.org.uk	pkdcharity.org.uk
Autosomal dominant renal structural disorders	Tess Harris	PKD UK	Regatul Unit	tess.harris[at]pkdcharity.org.uk	pkdcharity.org.uk
	Flavia Galletti	AIRP	Italia	flaviag.airp[at]renepolicistico.it	renepolicistico.it
	Uwe Korst	Bundesverband Niere e.V.	Germania	korst[at]rare-kidney.de	bundesverband-niere.de
	Karlheinz Steinecker	AIRG France	Franța	karlheinz.steinecker[at]nordnet.fr	airg-france.fr
	Christian Scheidler	ADTKD	Germania	Christian.Scheidler[at]outlook.de	adtkd.de
	Michel Schenkel	AIRG Belgium	Belgia	michel.schenkel[at]skynet.be	airg-belgique.org
Metabolic nephropathies	Claudia Sproedt	Cystinose Selbsthilfe e.V. & Cystinosis Network Europe	Germania	csproedt[at]leben-eben.com	cystinose-selbsthilfe.de cystinosis-europe.eu
	Marjolein Bos	Dutch and Flemish Cystinosis Group & Cystinosis Network Europe	Olanda	marjoleinbos[at]ziggo.nl	cystinose.nl cystinosis-europe.eu
	David van Bennekom	-	Olanda	davidvanbennekom[at]gmail.com	-
	Tina Verschuere	-	Belgia	tverschuere@hotmail.com	-
Pediatric CKD & Dialysis	Claudia Sproedt	Cystinose Selbsthilfe e.V. & Cystinosis Network Europe	Germania	csproedt[at]leben-eben.com	cystinose-selbsthilfe.de cystinosis-europe.eu
	Manuel Arellano Armisen	Federacion Nacional ALCER (FNA)	Spania	marellano[at]alcer.org	https://alcer.org