Grupo de trabajo | Grupo de trabajo | Organización de pacientes | País | Contacto | Website |
Junta de la RER | Susana Carvajal Arjona | HipoFam | España | s.carvajal[at]hipofam.org | |
| Uwe Korst | Bundesverband Niere e.V. | Alemania | ||
Hereditary glomerulopathies | Heidi Zealey | Alport UK | Reino Unido | info[at]alportuk.org | |
Immune glomerulopathies | Marieke van Meel | NephcEurope | Europa | mvanmeel[at]casema.nl | |
| Johanna Rohlfing | Nephie e.V. | Alemania | nephieev[at]googlemail.com | |
Tubulopathies | Virginia Guillon | Gitelbart Association | Francia | contact[at]gitelbart.fr | |
| Etienne Cosyns | AIRG Belgium | Bélgica | etienne-cosyns[at]live.com | |
| Antonio Cabrera Cantero | HipoFam | España | consultas[at]hipofam.org | |
| Susana Carvajal Arjona | HipoFam | España | s.carvajal[at]hipofam.org | |
Thrombotic microangiopathies | Christiane Mockenhaupt | MPGN und aHUS e.V. | Alemania | ||
| Francisco Monfort | ASHUA | España | fmonfort[at]ashua.es | |
| Mireira Vicenta Carratalá Ríos | ASHUA | España | mcarratala[at]ashua.es | |
| Renée de Wildt | NVN | Países Bajos | dewildt[at]nvn.nl | |
CAKUT & Ciliopathies | Tess Harris | PKD UK | Reino Unido | ||
Autosomal dominant renal structural disorders | Tess Harris | PKD UK | Reino Unido | tess.harris[at]pkdcharity.org.uk | |
| Flavia Galletti | AIRP | Italia | flaviag.airp[at]renepolicistico.it | |
| Uwe Korst | Bundesverband Niere e.V. | Alemania | korst[at]rare-kidney.de | |
| Karlheinz Steinecker | AIRG France | Francia | karlheinz.steinecker[at]nordnet.fr | |
| Christian Scheidler | ADTKD | Alemania | Christian.Scheidler[at]outlook.de | |
| Michel Schenkel | AIRG Belgium | Bélgica | michel.schenkel[at]skynet.be | |
Metabolic nephropathies | Claudia Sproedt | Cystinose Selbsthilfe e.V. & Cystinosis Network Europe | Alemania | csproedt[at]leben-eben.com | |
| Marjolein Bos | Dutch and Flemish Cystinosis Group & Cystinosis Network Europe | Países Bajos | marjoleinbos[at]ziggo.nl | |
| David van Bennekom | - | Países Bajos | davidvanbennekom[at]gmail.com | - |
| Tina Verschuere | - | Bélgica | - | |
Pediatric CKD & Dialysis | Claudia Sproedt | Cystinose Selbsthilfe e.V. & Cystinosis Network Europe | Alemania | csproedt[at]leben-eben.com | |
| Manuel Arellano Armisen | Federacion Nacional ALCER (FNA) | España | marellano[at]alcer.org |