Research Project

Project Title:	ADPedKD: an international web-based database for longitudinal data registry of children with autosomal dominant polycystic kidney disease (ADPKD).
Project Type:	Registry
Disease group(s):	AD structural kidney disorders
Project Summary:	ADPedKD, initiated by Djalila Mekahli (Leuven, Belgium) and Max Liebau (Cologne, Germany), is a international, longitudinal registry including ADPKD patients followed up from childhood. This project aims to provide an observational evidence base for unified diagnostic, follow-up and treatment approaches regarding modifiable disease factors such as hypertension in order to slow down disease progression. A longitudinal international registry on ADPKD children is built up in this ADPedKD project, to provide an observational evidence base for unified diagnostic, follow-up and treatment approaches regarding modifiable disease factors in order to slow down disease progression such as hypertension and proteinuria. We also aim to establish clinical and/or bio-markers predicting the risk of early and progressive disease and potentially lay the foundation for clinical trial patient selection.
Lead principal investigator(s):	Djalila Mekahli, Leuven
Co-investigator(s):	Franz Schaefer, Heidelberg Max Liebau, Cologne Giovanni Montini, Milan Stephanie De Rechter, Leuven
Project Period:	07/2017 - 09/2042
Sponsors:	Local resources
Project web page:	https://www.adpedkd.org