Research Project

Project Title:

ADPedKD: an international web-based database for longitudinal data registry of children with autosomal dominant polycystic kidney disease (ADPKD).

Project Type:

Registry

Disease group(s):

AD structural kidney disorders

Project Summary:

ADPedKD, initiated by Djalila Mekahli (Leuven, Belgium) and Max Liebau (Cologne, Germany), is a international, longitudinal registry including ADPKD patients followed up from childhood.
This project aims to provide an observational evidence base for unified diagnostic, follow-up and treatment approaches regarding modifiable disease factors such as hypertension in order to slow down disease progression.

A longitudinal international registry on ADPKD children is built up in this ADPedKD project, to provide an observational evidence base for unified diagnostic, follow-up and treatment approaches regarding modifiable disease factors in order to slow down disease progression such as hypertension and
proteinuria. We also aim to establish clinical and/or bio-markers predicting the risk of early and progressive disease and potentially lay the foundation for clinical trial patient selection.

Lead principal investigator(s):

Djalila Mekahli, Leuven

Co-investigator(s):

Franz Schaefer, Heidelberg
Max Liebau, Cologne
Giovanni Montini, Milano
Stephanie De Rechter, Leuven

Project Period:

07/2017   -   09/2042

Sponsors:

Local resources

Project web page:

https://www.adpedkd.org

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