News

Review on childhood nephrotic syndrome published in the Lancet

Don't miss taking a look at the very interesting article which is available online for free until October 20!


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ERKNet Summer Newsletter 2023

Find interesting and exciting updates on our network and its activities in this year's summer newsletter.

Have a nice summer holiday!

 


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20,000th patient in ERKReg enrolled

Important milestone achieved - thanks to all ERKReg editors!


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We would like to introduce ourselves!

ERKNet is revolutionizing Rare Kidney Disease Care in Europe!


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EU Medical Device Regulation threatens therapies for children with rare diseases - Open letter

European specialist societies have written an open letter to the European Commission urging it to ensure the supply of essential medical devices for…


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AIRG-France 2023 RESEARCH CALL - Summary

AIRG-France, patient advocacy group dedicated to the information and research on genetic kidney diseases, is launching its annual research call.


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MUC 1 manuscript published online in Kidney International

Novel MUC1 variant identified by massively parallel sequencing explains interstitial kidney disease in a large Dutch family. The article was recently…


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Rare Diseases Training

Statistical and Operational Challenges with Master Protocols


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World Kidney Day 2023

March 9 marks World Kidney Day 2023, a global initiative to raise awareness of the importance of kidney health and promote early detection and…


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New Patient website launched!

The patient website has now fused together with the main website and is therefore easier to find. The new ERKNet patient website provides…


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