Title

Author

WG/TF/Collaboration

Alport Syndrome

Torra et al.

Nephrol Dial Transplant, 2025

Hereditary Glomerulopathies

ERA, ESPN

Spinal Dysraphism in children and adolescents

K. Abrahamson et al.

EAU Guidelines Office

2025

CAKUT

eUROGEN, ERN-ITHACA, EAU, ESPU

Dent Disease

D. Bökenkamp et al.

Nephrol Dial Transplant

2025

Metabolic Nephropathies, Tubulopathies

ESPN

Congenital Nephrogenic Diabetes Insipidus

E. Levtchenko et al.

Nat Rev Nephrol.

2024

Tubulopathies

ESPN

Methylmalonic Acidemia

A. Servais et al.

Kidney Int. Rep.

2024

Metabolic and Stone Disorders, Tubulopathies

Metab-ERN

Tuberous Sclerosis Complex

D. Mekahli et al.

Nat Rev Nephrol.

2024

AD structural kidney disorders

ERA

Lipoprotein apheresis for children

D. Reijman et al

Atherosclerosis

2024

Pediatric CKD/Dialysis

ESPN

Bardet-Biedl Syndrome

H. Dollfus et al.

CAKUT and obstructive nephropathies

ERN-Eye, Endo-ERN, ERN-ITHACA

Primary hyperoxaluria 

J.W.Groothoff et al.

Nat Rev Nephrol.

2023

Metabolic and Stone Disorders

Oxaleurope

Tolvaptan for ADPKD

R. Müller et al.

Nephrol Dial Transplant

2022

AD structural kidney disorders

ERA

Fetal lower urinary tract obstruction

V. Capone et al.

Nat Rev Urol.

2022

CAKUT and obstructive nephropathies

eUROGEN

Non-obstructive kidney dysplasia 

S. Kohl et al.

Nephrol Dial Transplant

2022

CAKUT and obstructive nephropathies

Genetic testing in the diagnosis of CKD

N.Knoers et al.

Nephrol Dial Transplant

2022

TF Molecular Diagnostics

Cystinuria

A.Servais et al.

Kidney Int. 

2021

Metabolic and Stone Disorders

Bartter syndrome

M. Konrad et al.

Kidney Int.

2021

Tubulopathies

Distal renal tubular acidosis 

F. Trepiccione et al.

Nephrol Dial Transplant

2021

Tubulopathies

ESPN

Recurrence of FSGS/SRNS

L. Weber et al.

Pediatr Transplant.

2021

Pediatric Tx

CERTAIN

Congenital nephrotic syndrome: management

O. Boyer et al.

Nat Rev Nephrol. 

2021

Hereditary Glomerulopathies

ESPN

Congenital nephrotic syndrome: genetic aspects

B. Lipska-Zietkiewicz et al.

Eur J Hum Genet.

2020

Hereditary Glomerulopathies

ESPN

Title

Working Group

Collaboration

Status

Cardiovascular evaluation and management in ped CKD

PedCKD&Dialysis

ESPN

Delphi Round, expected Q1 2026

ARPKD

CAKUT and Ciliopathies

ESPN

Delphi Round, expected Q1 2026

Attenuation of CKD progression in ped CKD

PedCKD&Dialysis

ESPN

First  version of manuscript,  

circulated to authors,  expected Q1 2026

Monoclonal gammopathies of renal significance

Immune  glomerulopathies

EuroBloodNet

First  version of manuscript,  

circulated to authors,  expected Q1 2026

Lowe Syndrome

Metabolic nephropathies

ESPN 

First  version of manuscript in preparation,  expected Q1 2026

William Beuren Syndrome

CAKUT and Ciliopathies

ERN-ITHACA

Writing draft recommendation

Congenital TTP

TMA

 ESPN

Writing draft recommendation,  expected Q2 2026

Hypomagnesemia

Tubulopathies

ERA

Writing draft recommendation,  expected Q2 2026

Megaureter

CAKUT and Ciliopathies

eUROGEN

Writing draft recommendation,  expected Q2 2026

Nephrocalcinosis

Tubulopathies

Writing draft recommendation,  expected Q2 2026

Renal Replacement Therapy

Pediatric CKD/Dialysis

ESPN 

Litrature screenining,  expected Q4 2026

Belzutifan in von-Hippel-Lindau-Disease

AD  Structural Disorders

ERA,  eUROGEN, Endo-ERN, ERN-Eye, Genturis

Definiton PICO questions,  expected Q4 2026

Postnatal PUV

CAKUT/Ciliopathies

(eUROGEN)

In  planning,  expected Q1 2027

VUR high-grade

CAKUT/Ciliopathies

(eUROGEN) 

In  planning,  expected Q1 2027