Please find below the overview of all published, ongoing and planned guidelines
Title | Journal | Author | WG/TF/Collaboration |
| Pediatr Nephrol 2020; 35: 1529-1561 | A.Trautmann et al. | Hereditary Glomerulopathies |
European Journal of Human Genetics 2020 | B. Lipska-Zietkiewicz et al. | Hereditary Glomerulopathies | |
| Nature Reviews Nephrology 2021; 17
| O.Boyer et al. | Hereditary Glomerulopathies ESPN |
| Pediatr Transplant . 2021 May;25(3):e13955. | L. Weber et al. | Pediatric Tx CERTAIN |
Distal renal tubular acidosis: ERKNet/ESPN clinical practice points
| Nephrol Dial Transplant 2021; 36: 1585–1596
| F. Trepiccione et al. | Tubulopathy ESPN |
Kidney International 2021; 99: 48–58
| A.Servais et al. | Metabolic and Stone Disorders | |
Genetic testing in the diagnosis of chronic kidney disease: recommendations for clinical practice
| Nephrol Dial Transplant. 2022; | N.Knoers et al. | TF Molecular Diagnostics |
| Nephrol Dial Transplant 2022: 0: 1–12
| S.Kohl et al. | CAKUT and obstructive nephropathies |
Definition, diagnosis and management of fetal lower urinary tract obstruction | Nat Rev Urol. 2022 Feb 8 | V. Capone et al. | CAKUT and obstructive nephropathies |
Nephrol Dial Transplant (2022) 37: 825–839 | R. Müller et al | AD structural kidney disorders ERA | |
| Nature Reviews Nephrology 2023 ;
| J.W.Groothoff et al. | Metabolic and Stone Disorders Oxaleurope |
Clinical practice recommendations on lipoprotein apheresis for children with homozygous familial hypercholesterolemia: an expert consensus statement from ERKNet and ESPN
| Atherosclerosis, Volume 392, May 2024, 117525 | D. Reijman et al. | Pediatric CKD/Dialysis ESPN |
Nature Reviews Nephrology 2024 | D. Mekahli et al. | AD structural kidney disorders ERA | |
Clinical Practice Recommendations on Kidney Management in Methylmalonic Acidemia: an Expert Consensus Statement From ERKNet and MetabERN | Kidney International Reports 2024 | A. Servais et al. | Metabolic and Stone Disorders, Tubulopathies Metab-ERN |
International Expert Consensus Statement on the Diagnosis and Management of Congenital Nephrogenic Diabetes Insipidus (arginine vasopressin resistance) | Nature reviews. Nephrology 2024 | E. Levtchenko et al. | Tubulopathies ESPN |
Topic | Working Group | Collaboration | Status |
Alport Syndrome | Hereditary glomerulopathies |
| accepted in NDT |
Dent Disease | Tubulopathies |
| accepted to NDT |
Cardiovascular evaluation and management in ped CKD | PedCKD&Dialysis | ESPN | Paper in final preparation |
Attenuation of CKD progression | PedCKD&Dialysis | ESPN | Paper in preparation |
Spinal Dysraphism | CAKUT and Ciliopathies | eUROGEN, ITHACA | F2F meeting in November (Paris) |
ARPKD | CAKUT and Ciliopathies | ESPN | First f2f meeting held on 21/22 June 2024 |
Monoclonal gammopathies of renal significance | Immune glomerulopathies | EuroBloodNet | First draft ready – in review |
Lowe Syndrome | Metabolic nephropathies |
| Writing draft recommendations |
William Beuren Syndrome | ERN-ITHACA | Writing draft recommendation | |
Hypomagnesemia | Tubulopathies | ERA | Literature screening |
Megaureter | CAKUT and Ciliopathies | eUROGEN | Literature screening |
Nephrocalcinosis | Tubulopathies | Literature screening | |
KRT | Pediatric CKD/Dialysis | Litrature screenining | |
Postnatal PUV | CAKUT/Ciliopathies | eUROGEN | In planning |
VUR | CAKUT/Ciliopathies |
| In planning for 2025 |
update 20.11.2014
Topic | Working Group | Collaboration | Status |
Postnatal PUV | CAKUT/Ciliopathies | eUROGEN | In planning |
VUR | CAKUT/Ciliopathies |
| In planning |