The ERKNet working group on immune glomerulopathies is pleased to present a survey on the long-term outcome of childhood idiopathic nephrotic syndrome.
We are interested in studying the Long-term prognosis of childhood-onset idiopathic nephrotic syndrome at adult age. This survey aims to collect data that will improve the understanding of the natural history of idiopathic nephrotic syndrome.
We have set up this survey which can be accessed via the link below:
The inclusion criteria are:
- Patients must be adults (>18 years old) with a documented diagnosis of idiopathic nephrotic syndrome with onset in childhood (<18 years old at the time of first symptoms).
- Patients must have had at least one relapse or persistent proteinuria after the 18th birthday.
Data submission will be open until 20th January 2023.
If you have any problems filling in the data, please do not hesitate to contact Giulia Bassanese (giulia.bassanese[at]med.uni-heidelberg.de).
We are very grateful for your support with this project!
Your ERKNet working group on immune glomerulopathies