ERKReg Governance

Project Management Team 

Coordinator Franz Schaefer, Heidelberg University Hospital
Project manager Tanja Wlodkowski, Heidelberg University Hospital
  Stefanie Häberle, Heidelberg University Hospital
  Alicia Armbruster, Heidelberg University Hospital
Data manager Jose Ramírez García, Heidelberg University Hospital
IT support Bernd Will, GmbH
Statistician Jonas Hofstetter, Heidelberg University Hospital


ERKReg Board 

The registry is governed by a Registry Board composed of the following members:

  • The Chair
  • 4 members representing ERKNet thematic area working groups 
  • 1 member of the ERA-EDTA Workgroup for Inherited Kidney Diseases (WGIKD) 
  • 1 member of the ESPN Working Group for inherited renal disorders (WGIRD) 
  • 1 representative of the associated sub-registries 
  • 1 representative of the European Patient Advocacy Group (ePAG) for rare renal diseases 

Current Board members:

  • Franz Schaefer, Heidelberg University Hospital
  • Dario Roccatello, Torino San Giovanni Bosco Hospital
  • Gema Ariceta, Barcelona Vall d'Hebron
  • Olivier Devuyst, Brussels UCLouvain
  • Aude Servais, Paris Necker Hospital
  • Elena Levtchenko, Amsterdam UMC
  • Marina Vivarelli, Rome Bambino Gesù Children's Hospital
  • Clauda Sproedt, ePAG