ERKReg Governance
Project Management Team
| Coordinator | Franz Schaefer, Heidelberg University Hospital |
| Project manager | Tanja Wlodkowski, Heidelberg University Hospital |
| Stefanie Häberle, Heidelberg University Hospital | |
| Alicia Armbruster, Heidelberg University Hospital | |
| Data manager | Jose Ramírez García, Heidelberg University Hospital |
| IT support | Bernd Will, will.be GmbH |
| Statistician | Jonas Hofstetter, Heidelberg University Hospital |
ERKReg Board |
The registry is governed by a Registry Board composed of the following members:
- The Chair
- 4 members representing ERKNet thematic area working groups
- 1 member of the ERA-EDTA Workgroup for Inherited Kidney Diseases (WGIKD)
- 1 member of the ESPN Working Group for inherited renal disorders (WGIRD)
- 1 representative of the associated sub-registries
- 1 representative of the European Patient Advocacy Group (ePAG) for rare renal diseases
Current Board members:
- Franz Schaefer, Heidelberg University Hospital
- Dario Roccatello, Torino San Giovanni Bosco Hospital
- Gema Ariceta, Barcelona Vall d'Hebron
- Pietro Manuel Ferraro, Rome Gemelli Hospital
- Olivier Devuyst, Brussels UCLouvain
- Aude Servais, Paris Necker Hospital
- Elena Levtchenko, Leuven University Hospital
- Marina Vivarelli, Rome Bambino Gesù Children's Hospital
- Clauda Sproedt, ePAG Chair