News
ERKNet Summer Newsletter 2023
Find interesting and exciting updates on our network and its activities in this year's summer newsletter.
Have a nice summer holiday!
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20,000th patient in ERKReg enrolled
Important milestone achieved - thanks to all ERKReg editors!
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We would like to introduce ourselves!
ERKNet is revolutionizing Rare Kidney Disease Care in Europe!
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EU Medical Device Regulation threatens therapies for children with rare diseases - Open letter
European specialist societies have written an open letter to the European Commission urging it to ensure the supply of essential medical devices for…
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AIRG-France 2023 RESEARCH CALL - Summary
AIRG-France, patient advocacy group dedicated to the information and research on genetic kidney diseases, is launching its annual research call.
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MUC 1 manuscript published online in Kidney International
Novel MUC1 variant identified by massively parallel sequencing explains interstitial kidney disease in a large Dutch family. The article was recently…
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World Kidney Day 2023
March 9 marks World Kidney Day 2023, a global initiative to raise awareness of the importance of kidney health and promote early detection and…
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New Patient website launched!
The patient website has now fused together with the main website and is therefore easier to find. The new ERKNet patient website provides…
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Congrats: 5-year evaluation done
Our ERKNet HCP centers deserve a huge thank you for uploading everything on time despite the tremendous workload! Your collaboration has been greatly…
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