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At ERDERA, our mission is to unify knowledge, resources and expertise; boost clinical research with and for partners and spur innovation and EU competitiveness. 

We bring new Hope for Rare diseases Patients

Better prevention, better diagnosis, better treatment. This is our pledge to the over 30 million people living with a rare disease in Europe.

We transform rare disease research and care in Europe

Building on past partnerships, ERDERA will strengthen collaboration, align research funding, and support the integration of EU and national rare disease strategies. It aims to close the gap between research and patient benefit by translating findings into cost-effective solutions, while reducing knowledge fragmentation and promoting a more holistic approach to rare disease research and innovation.

We deliver tangible solutions for better outcomes

ERDERA aims to ensure diagnosis within six months for known rare diseases, or inclusion in a global diagnostic pipeline for unknown conditions. It seeks to enable the approval of 1,000 new therapies to address the 95% of rare diseases that currently lack treatment, by supporting clinical trial readiness and regulatory alignment. Moreover, ERDERA will strengthen the understanding of the impact of rare diseases on patients, families, and health systems to guide policy decisions.

ERDERA is Co-funden bei the European Union, transforming rare disease research and care in Europe by building on achievements of the previous EJP RD Programm.