Clinical Patient Management System (CPMS)

Patients with with rare diseases often present with complex clinical pictures that are difficult to diagnose and respond variably to standard therapies. In these cases, discussions with experts can be beneficial. To facilitate such consultations with leading European experts, the Clinical Patient Management System (CPMS) was launched by the EU in 2018. With the introduction of CPMS 2.0, this secure and GDPR-compliant platform has made major advancements, providing improved tools and functionalities to strengthen collaboration among healthcare professionals and support optimal care for patients with rare diseases.

The Clinical Patient Management System (CPMS) is a web-based telemedicine platform that allows relevant patient data (medical history, clinical, laboratory chemistry, genetic, histological, and radiological/sonographic data) to be shared and discussed with ERN experts while maintaining the highest European security standards. 

Numerous ERKNet experts are available for virtual case discussions in the CPMS. The CPMS Experts from multiple ERNs may also be invited to participate in the panel as needed.

CPMS is a free-of-charge service provided by the European Commission. European nephrologists and pediatric nephrologists can actively use the CPMS virtual consultation for referring challenging cases to ERKNet experts.

  • Simplified Access: Log in directly via EU Login – no separate SAAS registration required

     

  • Streamlined Case Submission: A more intuitive interface makes entering and sharing case data faster and easier.

     

  • Improved Meeting Tools:

    • Easier scheduling of virtual meetings

    • Built-in video conferencing

    • Invite experts from other ERNs

    • Calendar integration & meeting recording

       

  • Enhanced Data Privacy: Only the enrolling clinician and their assistant can access patient information.

     

  • New Communication Features: Integrated chat function for faster and more informal collaboration.

     

  • Customizable Notifications: Choose how you receive updates – in-app, email, or both

You are a physician working in an ERKNet Full Member or Affilated Partner hospital:

Physicians working in an ERKNet Full Member and Associated Partner hospitals can have direct access to the CPMS. If you want to open a case panel, please get in touch with the ERKNet central office at cpms@erknet.org. We will guide you through the registration and panel progress. 

You are a clinician working in a EU/EEA hospital non-member of an ERN:​

If you are working in a non-ERKNet centre and have a challenging case for which you need expert advice, please refer you case to one of your national ERKNet expert centres. They might be able to open a panel on behalf of you. Alternatively you can request a CPMS guest account which must be submitted to the ERN Coordinator. Please get in touch with the ERKNet central office first to assist you in the process at cpms@erknet.org.  

 

Important: The CPMS is not directly accessible to individual patients.​

International virtual consultation service for challenging cases. ERKNet experts provide their expertise and give advice to other physicians.

  • First line patient care is provided on the national level. The advice seeking physician  should contact their national ERKNet Center. To find your national ERKNet contact, please click here.
  • ERKNet members or affiliated partners can refer a challenging case for international consultation through the CPMS via the ERKNet Helpdesk.

 

How do I get CPMS Access?

Access to the Clinical Patient Management System (CPMS) is strictly regulated to protect the data privacy rights of the patients. In order to use the CPMS you have to have a EU login and subsequently request athorization to CPMS via SAAS.

Please find below the guidance documents on how to access CPMS:

1. How to create an EU Login

2. How to request access to CPMS

Mobile Access: Dedicated apps for Android and iOS allow case access and participation on the go. 

Helpdesk via ERKNet

If you want to seek ERKNet expert advice via CPMS or if you have any technical questions, do not hesitate to contact the ERKNet central office at cpms@erknet.org

Helpdesk via official CPMS IT support

If you have any queries, ideas, suggestions, or need help with an issue please contact ERN-CPMS via email at Sante-ERN-CPMS-itsupport@ec.europa.eu.

Is Patient Consent mandatory for enrolling patients into CPMS? 

Yes, all patients must give at least a consent for clinical care before sharing information on the CPMS platform.  The ERKNet central office can provide you the patient informed consent form. We have them available in all European languages. 

How can I invite the right experts from my ERN to look at my consultation request? 

Several ERKNet experts from all thematic areas are available for online consultation. ERKNet has a sophisticated database which allows us to find the best expert for consultation request. In need of a multidisciplinary approach, experts from other ERNs can also be invited to the panel. Please contact the ERKNet central office to seek advice for the invitations.

We offer Basic Training Webinars (von ERKNet inern und nicht von CPMS) to help you get started with the new CPMS 2.0 platform.

 

  • What to expect:

    • A presentation of the CPMS 2.0 platform and demonstration of its new features

    • Including:

      • How to enrol patients

      • How to open new panels

      • Using the video meeting and chat functions

         

  • When: The webinar dates will be announced shortly.

     

  • How: To participate, we will provide a link for you soon.