ERKNet Webinar Series "Connect, News and Innovations"
Our “Connect, News, and Innovation” webinar series is designed to keep our ERKNet members, patient representatives, and associated friends informed and engaged with the latest updates, projects, and innovations in our network.
These webinars are an exciting opportunity to connect, learn, and collaborate—and we look forward to many more! Stay tuned for upcoming sessions in our series!
Let us know if you have any feedback or suggestions. Reach out at: contact@erknet.org
Webinar 12.02.2025
On February 12, 2025, we hosted the second webinar of the series, featuring insightful presentations and discussions on key initiatives, new developments, and ongoing projects.
Missed the webinar? Watch the record here: https://youtu.be/wQly48I6MmI
Agenda:
- Guideline App and live feedback (Tanja Wlodkowski)
- Centre Activity Monitoring Systems - Results of 2024 (Vanessa Merck)
- Second Calld for ERKNet Clinical Exchange (Vanessa Merck)
- ERKucation - Graduees 2024, New Class, New Student Platform (Stefanie Häberle)
- ERKReg IgA Subregistry - User Day Announcement and First Feedback Survey (Eyal Rahmani)
- ERDERA project: Multi-Stakeholder Survey to Identify and Prioritize Rare Diseases for Advances Therapy medicinal procucts (ATMPs) (Matt Bolz-Johnson and Rita Francisco)
Webinar 10.10.2024
On October 10, 2024, ERKNet introduced a new webinar series designed specifically for ERKNet members, patients, and affiliated partners.
The first webinar was a success, with 70 attendees participating—we sincerely thank everyone who joined us for making it such a meaningful event.
Missed the webinar? Watch the record here: https://youtu.be/XI1fwYPZTyQ
Agenda:
- Upcoming events (Anna Dengler)
- Launch of IgA subregistry (Eyal Rahmani)
- IgA and friends (Valentina Neukel)
- ERKNet/LeiLa Guideline app (Tanja Wlodkowski)
- Patients app (Vanessa Merck)
- Erkucation (Stefanie Häberle)
- Research/clinical exchanges (Stefanie Häberle/Vanessa MercK)
- ErkyGPT (Johannes Trapp)
- Patient broschures (Stefanie Häberle)
- ePAG listening line (Karsten van den Wyngaert)
- JARDIN (Valentina Neukel)