for Physicians
for Patients
Show / Hide Navigation
About us
About ERKNet
European Patient Advocacy Group (ePAG)
Coordination Office
Network Structure & Governance
Center Competency Criteria
Conflict of Interest Policy
The ERNs
Our Experts
The European Reference Centers
Affiliated Partner Centers
Expert Finder - qualified doctors
Expert Work Groups
Task Forces
Disease Information
CPMS
Guidelines & Pathways
ERN Guideline Programme
ERKNet SOP - Practical organization of CPR
Overview ERKNet guideline projects
Hereditary Glomerulopathies
Immune Glomerulopathies
Tubulopathies
Metabolic & Stone Disorders
Thrombotic Microangiopathies
AD Structural Kidney Disorders
Congenital Malformations and Ciliopathies
Obstructive Uropathies
Pediatric Chronic Kidney Disease
Pediatric Dialysis
Pediatric Kidney Transplantation
Molecular Diagnostics
COVID19 Resources for Nephrologists
ERKReg & Registries
ERKReg Registry
Associated Registries
Education & Training
ERKNet Postgraduate Curriculum in Rare Kidney Diseases
Verification
Next Webinars
Past Webinars
Past CME Courses
Research
Research Database
ERKNet Surveys
Research Protocols
Publications
Acknowledgment Policy
Journal Watch
European Joint Programme on Rare Diseases
Monitoring Systems
Continuous Monitoring of ERNs
AMEQUIS: an Assessment, Monitoring, Evaluation and Quality Improvement System for the European Reference Networks (ERN)
Centre Activity Monitoring System (CAMS)
News
Events
All Events
8th ERKNet Annual Meeting 2024 | Venice & virtual
7th Annual Meeting Impressions
6th Annual Meeting Impressions
Jeune syndrome (ciliopathies)
Jeune Syndroom, Mooij voor Elkaar
External URL , Language: NL
Jeunesyndroom
External URL , Language: NL
« Back to disease list
