The European Economic and Social Committee (EESC), the Polish Ministry of Health, and the Medical University of Warsaw is holding a major conference entitled Towards an EU Action Plan on Rare Diseases on 10 April 2025 at 9 a.m. at the Medical University in Warsaw, Poland.
The conference will take place under the auspices of the Polish Presidency of the EU Council and will serve as a key milestone in ongoing efforts to shape an effective and comprehensive European strategy on rare diseases.
The event will focus on developing a European policy framework for rare diseases, complementing existing legislation, promoting investment, and enhancing cooperation at EU and national levels. A key goal is to advocate for a comprehensive European Action Plan on Rare Diseases with clear, measurable objectives.
Interpretation in the conference will be available for Polish, English and French.
The conference will be followed by a side-event 'Bridging Research and Care for Patients', held on 11 April 2025, dedicated specifically to clinicians, researchers and patients. This event is under the patronage of the Polish Ministry of Health and the European Economic and Social Committee, with support from ERDERA, MRA (ABM), EURORDIS and Krajowe Forum Orphan.
Please find more information on the registration and programme here: https://www.eesc.europa.eu/en/agenda/our-events/events/conference-towards-eu-action-plan-rare-diseases
