Dear ERKNet Members, Patients, and Friends,
We are delighted to invite you to our second "ERKNet Connect, News, and Innovations" webinar. Join us as we share exciting updates, insights, and developments within the network. Please register here: https://us02web.zoom.us/meeting/register/oPc-erpdQ8afYR0wyppFbg
1) ERKNet Guideline App – Live feedback session.
Tanja Wlodkowski
The app is available for download on:
• Apple iOS: https://apps.apple.com/us/app/erknet-leila/id1671728757
• Android: https://play.google.com/store/apps/details?id=erknet.leila.de
2) Centre Activity Measurement System – Results of 2024
Vanessa Merck
3) Second Call for application: ERKNet clinical exchange program
Vanessa Merck
4) ERKucation – Graduates 2024, New class, new Student platform
Stefanie Häberle
5) ERKReg Results – Analysis of Time to Diagnosis in Rare Kidney Diseases
Franz Schaefer
6) ERKReg IgA Subregistry – User day announcement + First feedback survey
Eyal Rahmani
7) ERDERA Project: Multi-Stakeholder Survey to Identify and Prioritize Rare Diseases for Advanced Therapeutic Medicinal Products (ATMPs)
TBD
We are looking forward seeing you all during the webinar.
Best wishes
Your ERKNet Team