On 10th of October ERKNet introduced a new webinar series designed specifically for ERKNet members, patients, and affiliated partners. This format aims to regularly update our network on the latest development, challenges, and opportunities for engagement in the field of rare kidney diseases.
These webinars are an essential way to stay connected and informed, fostering collaboration and engagement across the ERKNet network.
The first webinar was a success, with 70 attendees participating—we sincerely thank everyone who joined us for making it such a meaningful event.
We look forward to welcoming you to future sessions!
Your ERKNet Team
Watch the webinar here: https://youtu.be/XI1fwYPZTyQ?feature=shared
Agenda
Upcoming events: 0:50
Launch of IgA subregistry: 4:08
IgA and friends: 25:35
ERKNet/LeiLa Guideline app: 26:53
Patients app: 34:28
Erkucation: 41:58
Research/clinical exchanges: 43:24
ErkyGPT: 50:44
Patient broschures: 1:00:21
ePAG listening line: 1:03:08
JARDIN: 1:11:43