Dear ERKNet friends,
We are pleased to share with you the release of new clinical practice guidelines for children and adolescents affected by spinal dysraphism, with a strong emphasis on urological health. This guidelines has been jointly developed by European Association of Urology, European Society for Paediatric Urology, ERN eUROGEN, ERN ITHACA, ERN ERKNet, and the International Federation for Spina Bifida and Hydrocephalus, these guidelines mark a significant step forward in standardising care, improving outcomes, and ensuring a holistic, multidisciplinary approach for patients.
Key Highlights of the Guidelines:
✅ Early identification of urological complications, including neurogenic bladder and voiding dysfunction.
✅ Standardised evaluation protocols, including urodynamic studies, imaging, and urinary tract monitoring.
✅ Comprehensive management strategies to prevent renal deterioration and improve kidney & bladder function.
✅ Recommendations for long-term surveillance to optimise urological outcomes into adolescence and beyond.
Let’s raise awareness about the importance of urological care in managing spinal dysraphism. We encourage clinicians, researchers, and patient advocates to share this important resource and support its implementation across Europe.
